People with lived experiences' unique and diverse perspectives within local contexts add value to research throughout, from: leading/ co-leading research; development of research questions, objectives and goals; data collection from peers and analysis; dissemination of results to broader audience; translating results into policy and practice through innovation and cost-effectiveness; and monitoring and evaluation of services and programs to advance efficacy.
HBGI Lived Experience Council
Healthy Brains Global Initiative (HBGI) fully embeds the perspectives of people most affected by mental and neurological health research in both its strategy and action.
The HBGI Lived Experience Council, brings together people with lived experience across a wide variety of ages, locations, conditions, and ethnicities to help build HBGI from the bottom-up.
Our Founder/CEO, Charlene Sunkel, along with a few other of our members, serve on the Lived Experience Council.
Our Research Sub-Committee
Our Research Sub-Committee investigates various topics of interest. The team published a paper in The Lancet Psychiatry on "Perspectives of lived experience across continents: our reality and call for universal health coverage". Currently working on a paper around Peer Support Work.
Our members have also been involved in various academic papers and publications.