RESEARCH
People with lived experience play a valuable role in all phases of research
People with lived experiences' unique and diverse perspectives within local contexts add value to research throughout, from: leading/ co-leading research; development of research questions, objectives and goals; data collection from peers and analysis; dissemination of results to broader audience; translating results into policy and practice through innovation and cost-effectiveness; and monitoring and evaluation of services and programs to advance efficacy.
Lancet Commission on Ending Stigma and Discrimination in Mental Health
The Lancet Commission on Stigma and Discrimination in Mental Health (LCS), co-lead by Prof Sir Graham Thornicroft (Kings College London) and Ms Charlene Sunkel (Global Mental Health Peer Network), is a reappraisal of stigma and discrimination in mental health that aims to put forth a set of radical and practical recommendations to guide action locally, nationally, and globally to address mental health-related stigma and discrimination.
We aim to collect new data from across continents and are asking for perspectives on stigma and discrimination in mental health from individuals with lived experience of a mental health condition and family members/ carers of someone with a mental health condition.
The data collection takes place in the context of preparing the LCS report. The Lancet is a renowned medical journal, at the Lancet Commissions are reports on urgent and often neglected or understudied health issues.
The LCS report will summarise the current state and provide recommendations on how to reduce stigma related to mental health conditions. In this context, the lived experiences of people with mental health conditions and family/carers will be collected through the online survey.
We aim to collect new data from across continents and are asking for perspectives on stigma and discrimination in mental health from individuals with lived experience of a mental health condition and family members/ carers of someone with a mental health condition.
The data collection takes place in the context of preparing the LCS report. The Lancet is a renowned medical journal, at the Lancet Commissions are reports on urgent and often neglected or understudied health issues.
The LCS report will summarise the current state and provide recommendations on how to reduce stigma related to mental health conditions. In this context, the lived experiences of people with mental health conditions and family/carers will be collected through the online survey.
WATCH THIS SPACE for more information about the LCS report that will be launched in October 2022
HBGI Lived Experience CouncilHealthy Brains Global Initiative (HBGI) fully embeds the perspectives of people most affected by mental and neurological health research in both its strategy and action.
The HBGI Lived Experience Council, brings together people with lived experience across a wide variety of ages, locations, conditions, and ethnicities to help build HBGI from the bottom-up. Our Founder/CEO, Charlene Sunkel, along with a few other of our members, serve on the Lived Experience Council. |
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Our Research Sub-CommitteeOur Research Sub-Committee investigates various topics of interest. The team published a paper in The Lancet Psychiatry on "Perspectives of lived experience across continents: our reality and call for universal health coverage". Currently working on a paper around Peer Support Work.
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Our members have also been involved in various academic papers and publications.